Screening for Unmet Needs in Cystic Fibrosis Patients (SUN-CF)
Trial Objectives
Social risk factors, such as financial instability, food insecurity, discrimination, or lack of access to medication and treatments contribute to adverse health outcomes. Cystic fibrosis (CF) researchers recognize that these barriers can make it harder for CF patients to manage their disease and want to understand and better address unmet needs in adults with CF.In this study, volunteers will complete a one-time survey to understand the unique risks and needs of those with CF. The data from the survey will help researchers develop screening tools to help improve health care delivery in the future.
Who Can Participate
Adults 18 years and older with a CF diagnosis who understand either English or Spanish, and who meet
at least one of the following categories:
• A race other than white
• Hispanic ethnicity
• Have public health insurance or no health insurance
• Have a primary address at a rural residence
Age: 18+ Gender: Any
Estimated Time Commitment
A one-time survey that will take about 30 minutes to complete
Payment & Reimbursement
Payment: Provided
Travel Reimbursement: Not Available
Trial Location
National Jewish Main Campus, Denver, CO
Trial Sponsors
Gabriela Oates, PhD
Principal Investigators
Jennifer L. Taylor-Cousar, MD, MSCS