Primary ciliary dyskinesia (PCD) Care | National Jewish Health

Primary Ciliary Dyskinesia (PCD) Program

Primary ciliary dyskinesia (PCD) is a rare inherited genetic disorder that is estimated to affect at least 1 in 7,554 individuals worldwide, according to the National Organization of Rare Disorders.

At National Jewish Health in Denver, Colorado, our specialists regularly care for patients with primary ciliary dyskinesia using the most up-to-date and proven treatments. We also have extensive experience in treating bronchiectasis, which is a common condition in patients with PCD.

PCD Program Highlights

One of only a few Adult PCD Foundation-accredited Clinical and Research Network Centers in the nation
Personalized, multidisciplinary care for all associated conditions of primary ciliary dyskinesia
Expertise in airway clearance techniques that are important for PCD patients
Access to the latest clinical trials for primary ciliary dyskinesia and related conditions

Personalized Medicine and Care

Our multidisciplinary team of pulmonologists, respiratory therapists, nurses and other specialists work together to develop a comprehensive, personalized treatment plan for each patient.

We also work closely with Children’s Hospital Colorado, where fellow PCD experts practice and engage in research. Our goal is to improve patient lives.

Reasons to Choose National Jewish Health

The leading respiratory hospital in the nation and the only one devoted fully to the treatment of respiratory and related illnesses
Ranked #1 or #2 in Pulmonology by U.S. News & World Report for 26 consecutive years
Ranked in the top 5% of hospitals in the nation by HCAHPS
Physicians consistently recognized among the best in the nation by multiple services, including Best Doctors in America and Castle Connolly
Among the top 6% of organizations funded for research by the NIH, providing patients access to hundreds of active clinical trials
124-year history of focus on care, research and education serving patients from around the world with lung, heart, immune and related disorders

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Nationally Recognized Expertise

National Jewish Health is recognized nationally for its expertise in primary ciliary dyskinesia and related conditions.

We are accredited by the PCD Foundation as a Clinical and Research Network Center.
Our hospital is recognized as a top respiratory hospital by U.S. News & World Report.
Our physicians have helped write the clinical care guidelines for diagnosis and care of bronchiectasis patients that are used by pulmonologists throughout the nation.
Articles written by our physician-scientists and researchers are regularly published in peer-reviewed scientific journals, including many of the most influential publications such as Cell, New England Journal of Medicine, The Lancet, JAMA and Nature.
Our physician-scientists are often invited to present at national and international conferences where physicians gather to learn about the latest advancements in medicine.

Benefit from the Latest Research

Our physician-scientists and researchers actively participate in primary ciliary dyskinesia research that improves patient lives.

Through our research we:

Develop diagnostic tests
Identify new treatments and therapies
Discover new medications

We also participate in the PCD Foundation Registry, which collects vital health and demographic information from people diagnosed with this rare disease.

Clinical Trials & Research Studies

National Jewish Health offers access to clinical trials and research studies for patients with primary ciliary dyskinesia and related conditions. Our research coordinators can help determine which studies may be right for you.

Clinical Trials